Patient Advocacy in Research: Merely an Afterthought? : The Patient: Patient-Centered Outcomes Research

help button in red

(I found this article very interesting for all of us who are patient advocates. It was written by Musa Mayer of advancedbc.org.) In 20 years of breast cancer advocacy, I’ve witnessed major changes in attitude toward advocates on the part of basic researchers, clinical investigators, and others involved with the science of the disease. Not…

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To Pink or Not to Pink

a flower

This is a very tough question. I love pink. I always have loved pink. I still want to love pink. Surely we don’t need to destroy the beauty of the color pink because of “pinkwashing”. I first heard the word from Gayle Sulik who I met at a luncheon during the NBCC May 2011  Summit…

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You have Breast Cancer

Breast Cancer in red

I am a breast cancer survivor. I heard the words “you have breast cancer” over the phone from my gynecologist on December 15, 2004. I had a sentinel node biopsy in January with a lumpectomy and the first node was positive. I will never forget the way my very famous breast surgeon told me that I had to do…

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