Posts by Susan
Happy Father’s Day 2015
I took some time away from personal blogging. This site is the temporary site for A4BC while the main site will be ready very soon. It’s got so many amazing features that we can’t wait to unveil. Meanwhile we continue to post news, issues and videos, stories, articles, and calls to action etc. We are…
Read MoreSenate Amendment Threatens DOD Breast Cancer Research Program (DOD BCRP)
TAKE ACTION!The Senate is currently considering the National Defense Authorization Act for Fiscal Year 2016 (HR 1735). Sen. John McCain (R-AZ) has filed an amendment (#1483) that if passed, would severely restrict the types of medical research that could be funded by the Department of Defense and would serve a devastating blow to DOD funding…
Read MoreSeeking Volunteers, Advocates, and Employees!
Get Involved and Make a Difference! We are in the process of getting our new official web site up live in 2 weeks! There are many features and important information that we are looking forward to sharing. We are interested in hearing from anyone who wants to volunteer, get involved and/or seeking employment. Please consider…
Read MoreI am in Free Fall but Determined to Climb out of Depression
It’s been the most difficult New Year that I have ever experienced. On a personal level I am trying to approach this year with ease and joy. It’s been two years since Li died and I am drowning in depression. Not sure whether anything I am doing is worth anything. I have never worked so…
Read MoreSan Antonio Breast Cancer Symposium – A Patient Advocate’s POV
It was extremely exciting being at the 36th annual Breast Cancer Symposium in San Antonio (SABCS). I was hoping to go on Twitter during the Symposium but was having a lot of trouble during the conference with the wifi signal. I decided to concentrate on the presentations and when I could find information being reported…
Read MoreMetastatic Breast Cancer Awareness Day – Every Day and every October 13
We all know that October is Breast Cancer Awareness month. There’s pink everywhere and all sorts of breast cancer awareness campaigns. In 2009 Metastatic Breast Cancer (MBC) got one day for awareness. Thanks to the efforts of 9 metastatic patients and countless others, they got congress to designate October 13th as Metastatic Breast Cancer Awareness…
Read MoreDr. Susan Love’s Research Foundation Teams Up
I received this in an email yesterday from Dr. Susan Love’s Research Foundation. Leave it to Dr. Susan Love to bring together Susan G. Komen, the Young Survival Coalition, and the Dr. Susan Love Research Foundation to collaborate on the collateral damage and side effects of Breast Cancer as part of the Health of Women…
Read MoreMetavivor needs Volunteers
Hi Everyone! Metavivor is having a Nationwide call for Volunteers! MAJOR EVENT TO BRING ATTENTION TO THE NEEDS OF THE METASTATIC BREAST CANCER COMMUNITY. BECAUSE. IT’S TIME…. METAvivor Awareness Campaign 2014 Sea to Sea for MBC Metavivor is now accepting applications for volunteers! Even if you can only spare some small time to volunteer Metavivor…
Read MoreThe Battle We Didn’t Choose – My Wife’s Fight with Breast Cancer
Hi Everyone! There’s a beautiful love story between Angelo Merendino and his wife Jen. Angelo is an extremely talented photographer. He was also an incredible husband to his wife Jen who got metastatic breast cancer. He photographed her as she lived with this disease all the while loving and caring for her in such a…
Read More“METavivor on the Move” – I am on the team
I have written about my passion (see: While Flying – Frustration surrounds Me ) for doing everything I can to advocate for Metastatic Breast Cancer (MBC). 6-10% of breast cancer patients are initially diagnosed at Stage IV (MBC). 30% of all breast cancer patients initially diagnosed with early stage breast cancer will eventually metastasize (or have what some of…
Read More