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Metastatic Breast Cancer Resources

5.2 Metastatic Breast Cancer Resources 1

If you would like to add your organization to this list, please contact us.

AdvancedBC.org

Information and support for patients, family members, and friends.It is dedicated solely to the needs of people living with metastatic breast cancer.  Here you will find links to online resources, information about research and treatments, and the perspectives of Musa Mayer, long-time advocate and author.
http://advancedbc.org/

Advanced Breast Cancer International Consensus Conference, Lisbon, Portugal

http://www.abc-lisbon.org/

After Breast Cancer Diagnosis (ABCD)

People affected by breast cancer – patients, family and friends – benefit from personalized, reliable informational and emotional support as a complement to appropriate medical care.One-to-one support provided by people who have first-hand experience with similar breast cancer diagnosis, treatment history and similar life circumstances is a fundamental element of personalized support.One-to-one support, which we call mentoring, is essential to building a life after diagnosis, leading to a more confident, empowered survivor.
800.977.4121 Breast Cancer Helpline – Immediate Support from a Survivor & Mentor Match
414.977.1780 Office and all Program Services
414.977.1781 Facsimile
abcdinc@abcdmentor.org
5775 N Glen Park Road, Suite 201
Glendale, WI 53209
http://www.abcdbreastcancersupport.org/

Alamo Breast Cancer Foundation (ABCF)

Alamo Breast Cancer Foundation (ABCF) is a 501(c)3, nonprofit volunteer organization located in San Antonio, TX. Offers community outreach, educational programs and access to information on the latest research of Breast Cancer. It also educates patients about clinical trials.
http://www.alamobreastcancer.org/clinical-trials/

American Cancer Society (ACS)

Breast cancer services include Reach to Recovery, a support program for newly diagnosed breast cancer patients; Look Good, Feel Better, a program designed to help women with their appearance. Information pamphlets are available upon request.
(800) ACS-2345
www.cancer.org

Brainmets

BRAINMETSBC.ORG offers women with metastatic breast cancer and their families a place to learn about brain and other central nervous system (CNS) metastases from patient, medical and research perspectives.
www.brainmetsbc.org

Breast Cancer Connections

A non-profit dedicated to providing information and support to people dealing with breast cancer or breast health issues. Their Living with Cancer programs offers support for metastatic patients. Women with advanced breast cancer are now living so much longer that in many instances it has been labeled a chronic disease. Feelings of uncertainty and anxiety are often a part of living with cancer. It’s important to talk about your concerns and challenges with people who understand, and it’s just as important to celebrate life’s fulfillment and joy. The following programs support people with metastatic disease on their journey.
Breast Cancer Connections
390 Cambridge Avenue
Palo Alto, CA 94306
(650) 326-6686 Helpline
(888) 222-4401 Toll Free
http://bcconnections.org/facing-cancer/living-with-cancer/

BreastCancerTrials

The mission is to increase access to clinical trials for persons affected by breast cancer. This is a highly recommended page by many metastatic patients who have found very helpful information here.
Mailing address
BreastCancerTrials.org
3450 California Street
San Francisco, CA 94118
Phone: (415) 476-5777
Email address: help-desk@bctrials.org
www.breastcancertrials.org

Breastcancer.org

A non-profit organization dedicated to providing information and community to those touched by this disease. 
www.breastcancer.org

Cancer Action Now

The Marti Nelson Cancer Foundation/CancerActionNow.org collaborates with other organizations to speed availability of effective and safe cancer treatments.  Cancer ActionNow.org helps cancer patients identify treatment options to consider if standard treatment for their cancer does not help them.
http://www.canceractionnow.org/

Circulo de Vida (Circle of Life)

Its mission is to walk alongside Latinos living with cancer and their families as they find their way through fear, confusion, and uncertainty of a cancer diagnosis
2601 Mission, Ste. 702
San Francisco, CA
Phone: 415-648-9423
www.circulodevida.org

Clinical Trials Information

Provides regularly updated information about federally and privately supported clinical research in human volunteers: the trial's purpose, who may participate, locations, and phone numbers for more details. The information provided on ClinicalTrials.gov should be used in conjunction with advice from health care professionals.
www.clinicaltrials.gov

LIVESTRONG

We empower the cancer community to address the unmet needs of cancer survivors. To do so, we encourage collaboration, knowledge sharing and partnership. Then, we develop evidence-based solutions to address both the common and unique problems survivors are facing around the world.
http://www.livestrong.org/

Mautner Project of Whitman-Walker Health

The Mautner Project of Whitman-Walker Health is committed to improving the health of women who partner with women including lesbian, bisexual and transgender individuals, through primary medical care, support services, education and advocacy.
1701 14th St., NW - Washington, DC 20009
Phone support is available by appointment. For more information call 202.797.3570.
http://www.whitman-walker.org/mautnerproject

METAvivorResearch and Support Inc.

A non-profit organization dedicated to increasing awareness of advanced breast cancer and equity in research and patient support. From support groups to funding vital research, our programs sustain the power of hope. Passionately committed patients ourselves, we rally public attention to the urgent needs of the metastatic breast cancer community, help patients find strength through support and purpose, and make every dollar count as we work with researchers to regain longevity with quality of life. Regardless of where you are in your journey, we can assure you we've been there too. Reach out to us. We are here for you. METAvivor is dedicated to the specific fight of women and men living with stage 4 metastatic breast cancer. METAvivor remains the sole US organization dedicated to awarding annual stage IV breast cancer research.
http://www.metavivor.org
Mailing Address: 1783 Forest Drive #184. Annapolis, MD 21401
Office Address: 90 Ritchie Highway. Pasadena, MD 21122
(410) 491-5760.  Office hours are Wednesday and Thursday from 9:00 am to 4:30 pm

METUP.ORG

METUP is a diverse, non-partisan group committed to direct action for a viable cure for breast cancer. We protest and demonstrate; we meet with government and health officials and researchers; we support research into metastatic disease; and we speak out against the sexualizing of breast cancer.
Contact: mbcexchange@gmail.com
http://metup.org/

National Cancer Institute (NCI)

The Cancer Information Service (CIS) of NCI serves as a community resource and provides information about cancer, including access to NCI's treatment database. NCI also organizes the Physician Data Query (PDQ), which provides information on clinical trials.
www.cancer.gov
(800) 4-CANCER

National Lymphedema Network

www.lymphnet.org
(800) 541 3259
International nonprofit provides education and guidance to lymphedema patients, health care professionals, and the general public.

Noreen Fraser Foundation

A non-profit organization dedicated to raising funds for groundbreaking women’s cancer research and raising awareness of the importance of early detection for the prevention of women’s cancers. The research we fund is focused on making a real impact on women’s lives now. We feel that while a lot of money has been raised in the name of cancer, it has been divided amongst thousands of researchers and thousands of ideas diluting its impact. We work directly with our internationally renowned medical advisors, some of the world’s brightest physicians and scientists, to select research to fund that will make an impact on the lives of women quickly and to hone our messaging to make the greatest impact on the women who need our help now.
http://www.noreenfraserfoundation.org/

Susan G. Komen ®

Dedicated to saving lives and ending breast cancer forever by empowering people, ensuring quality care for all, and energizing science to find the cure. Susan G. Komen, formerly known as Susan G. Komen for the Cure and originally as The Susan G. Komen Breast Cancer Foundation, often referred to as simply Komen, is the most widely known, largest and best-funded breast cancer organization in the United States.  Since its inception in 1982, Komen has spent (through 2010) nearly $1.5 billion for breast cancer research, education, advocacy, health services and social support programs in the U.S., and through partnerships in more than 50 countries.  Today, Komen has more than 100,000 volunteers working in a network of 124 affiliates worldwide.
www.komen.org

The Metastatic Breast Cancer Project

The Metastatic Breast Cancer Project is lead by the Broad Institute of MIT and Harvard, a nonprofit academic research institution whose mission is to dramatically accelerate the understanding and treatment of disease.
Contact: info@mbcproject.org
617-800-1622
Broad Institute of MIT and Harvard
415 Main St, Cambridge, MA
02142, United States

Young Survival Coalition

Premier international, nonprofit network of breast cancer survivors and supporters dedicated to the concerns and issues that are unique to young women and breast cancer.
National Headquarters:
80 Broad Street, Suite 1700. New York, NY, 10004
phone: 877.972.1011 
email:  resourcelink@youngsurvival.org
Local Support/Networking Groups all over the country. Find us on MeetUp.com (search YSC in order to find the closest YSC group to you)
www.youngsurvival.org