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Advocacy Resources

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Financial Resources for Cancer Patients
Assistance Speaking to Your Doctor about Treatment
Looking Good with Cancer: Tips for Looking Your Best
Online Communities For Cancer Patients
Legal Resources for Cancer Patients

 

 

If you would like us to add your suggestion or organization please contact us.

Advocacy For Me.org – Learning to Advocate for My Health

Online Learning Designed to Help You Navigate Your Health Care Journey. Want to find your voice and learn how to navigate the health care system?  You've come to the right place! Advocacy for yourself means asking questions, getting the information you need, and standing up for what matters to you. Your life depends on it!
Access to this site is free, but restricted to participating Komen Affiliates and the communities they serve. You will need a registration code to create your account. If you need one, you must fill out an online form.
http://www.advocacyforme.org/

Alamo Breast Cancer Foundation (ABCF) Advocate Program

This ABCF Advocate Program is a component of the San Antonio Breast Cancer Symposium (SABCS), which is held annually in early December at San Antonio Texas. Since 1997, ABCF has invited representatives from breast cancer patient advocacy organizations from around the world to apply for scholarships (provided they meet specific criteria) in order to attend the early December SABCS conference. To date there have been over 700 applicants, and ABCF has provided scholarships to 491 patient advocates.
http://www.alamobreastcancer.org/patient-advocate-program/

American Cancer Society Action Network (ACS-AN)

ACS-AN is the leading cancer advocacy organization. Its website provides information on joining federal and state campaigns, news briefs on advocacy developments, advocacy resources, and event listings.
(800) ACS-2345.
http://www.acscan.org/

American Society of Clinical Oncology

ASCO promotes and provides for lifelong learning for oncology professionals; cancer research; an improved environment for oncology practice; access to quality cancer care; a global network of oncology expertise; and educated and informed patients with cancer. ASCO is supported by its affiliate organization, the Conquer Cancer Foundation, which funds ground-breaking research and programs that make a tangible difference in the lives of people with cancer.

ASCO In Action is specifically targeting patient advocates to help them find the latest news and resources in clinical oncology and research.
http://www.asco.org/advocacy/news

Annie Appleseed Project

A nationally recognized organization that advocates and produce information on the Evidence-based Complementary & Alternative Cancer Therapies.
7319 Serrano Terrace, Delray Beach, FL 33446-2215.
(561) 749-0084
email: info@annieappleseedproject.org
http://www.annieappleseedproject.org/

Black Women’s Health Imperative

Our advocacy efforts move us beyond documenting the enormous health disparities that exist for Black women. We focus on actionable steps for eliminating the undue health burdens Black women face. Operating within a reproductive justice framework, our work underscores how inequalities and complexities in Black women’s lives profoundly impact reproductive choices and rights and healthcare decision making. Our action and movement building strategies place Black women and their lived experiences at the forefront and expose the conditions and systems that impinge on reproductive autonomy.  Our goal is to regain primacy in advocating for policies that protect women’s human rights and support a woman’s decision-making and choices.
1726 M Street, N.W., Suite 300. Washington, D.C. 20036
Phone: (202) 548-4000
http://www.blackwomenshealth.org


Breast Cancer Action

Challenging assumptions. Inspiring change.

Breast Cancer Action (BCAction) is a national grassroots education and activist organization working to address and end the breast cancer epidemic. Our mission is to achieve health justice for all women at risk of and living with breast cancer.
657 Mission Street, Suite 302
San Francisco, CA, 94105.
415-243-9301 Ext. 14
Toll free 877.STOPBC
www.bcaction.org
www.thinkbeforeyoupink.org

 

Breast Cancer Fund

The Breast Cancer Fund, our staff and board are committed to service of our mission, and strive to be effective leaders in the environmental health movement. That means putting your dollars to use on real change: Seventy-eight percent of the organization's income goes directly to our programmatic work, including publication of groundbreaking scientific reports, advocacy for state and federal legislative solutions and public education about environmental risks and breast cancer.
1388 Sutter Street, Suite 400
San Francisco, CA 94109-5400 View Map
415-346-8223 or toll-free (866) 760-8223
415-346-2975 fax
info@breastcancerfund.org

Breast Cancer Care and Research Fund

Breast Cancer Care & Research Fund's mission is to eradicate breast cancer through education, research, advocacy and community outreach.
http://breastcancercare.org/
email: info@bccrf.org 
(310) 927-7606
6022 Wilshire Blvd., Suite 201. Los Angeles, CA 90036

Cancer Advocacy Now

A grass-roots program created by the National Coalition of Cancer Survivorship that helps cancer patients become effective advocates on issues that affects them.

Cancer Prevention Coalition

520 North Michigan Avenue, Suite 410
Chicago, IL 60611
(312) 467-0600

Center for Patient Partnerships of the University of Wisconsin at Madison

Our patient advocacy includes comprehensive support to help clients: clarify diagnosis and treatment options; make evidence- and value-based medical decisions; gain access to quality healthcare; connect with community resources; negotiate coverage with healthcare stakeholders; communicate constructively with employers; assess values, strengths and priorities; identify financing options; partner with healthcare and other service providers; build their own self-advocacy skills as needed. Services are also available in Spanish.
Call Advocacy Line at (608) 890-0321, or Email us at advocacy@patientpartnerships.org
http://www.patientpartnerships.org/advocacy/our-services/overview/

Coalition for Genetic Fairness

This coalition of nonprofit and for-profit groups advocates for passage of federal genetic laws prohibiting genetic discrimination.
www.geneticfairness.org

Friends of Cancer Research

This is a nonprofit organization that helps speed progress toward better tools to prevent, detect, and treat cancer. It helps educate the public about cancer awareness.
1800 M Street NW, Suite 1050. Washington, DC 20036
Phone: 202.944.6700
http://www.focr.org/

FORCE (Facing Our Risk of Cancer Empowered)

FORCE was founded on the principle that no one should face hereditary cancer alone. As a twelve year survivor of hereditary breast cancer, I know that confronting cancer risk can be a complex, confusing, and highly individual journey. Everyone’s path is slightly different because there are no guaranteed prevention, screening, or treatment options. FORCE does not have definitive answers or medical solutions -- unfortunately, no one does at this time -- but we can help you navigate these uncharted waters by equipping you with resources, information, and support.
www.facingourrisk.org

Intercultural Cancer Council

This council promotes policies, programs, partnerships, and research to eliminate the unequal burden of cancer among racial and ethnic minorities and medically underserved populations in the United States and its associated territories. 
http://iccnetwork.org/

International Union Against Cancer

We unite the cancer community to reduce the global cancer burden, to promote greater equity, and to integrate cancer control into the world health and development agenda.
http://www.uicc.org/

LIVESTRONG

We empower the cancer community to address the unmet needs of cancer survivors. To do so, we encourage collaboration, knowledge sharing and partnership. Then, we develop evidence-based solutions to address both the common and unique problems survivors are facing around the world.
http://www.livestrong.org/

METAvivorResearch and Support Inc.

A non-profit organization dedicated to increasing awareness of advanced breast cancer and equity in research and patient support. From support groups to funding vital research, our programs sustain the power of hope. Passionately committed patients ourselves, we rally public attention to the urgent needs of the metastatic breast cancer community, help patients find strength through support and purpose, and make every dollar count as we work with researchers to regain longevity with quality of life. Regardless of where you are in your journey, we can assure you we've been there too. Reach out to us. We are here for you. METAvivor is dedicated to the specific fight of women and men living with stage 4 metastatic breast cancer. METAvivor remains the sole US organization dedicated to awarding annual stage IV breast cancer research.
http://www.metavivor.org
Mailing Address: 1783 Forest Drive #184. Annapolis, MD 21401
Office Address: 90 Ritchie Highway. Pasadena, MD 21122
(410) 491-5760.  Office hours are Wednesday and Thursday from 9:00 am to 4:30 pm

National Action Plan on Breast Cancer

http://www.napbc.org/napbc/index.htm
The NAPBC, a public/private partnership of many member organizations in government and the private section, is coordinated by the Public Health Service's Office on Women's Health, Department of Health and Human Services. The mission of the NAPBC is to speed progress toward eradicating breast cancer. Has good links to a variety of organizations and background information.

National Breast Cancer Coalition

1707 L Street, NW, Suite 1060
Washington, DC 20036
(202) 296-7477
FAX: (202) 265-6854
Web Site: http://www.natlbcc.org/
The National Breast Cancer Coalition is a grassroots effort in the fight against breast cancer, composed of a network of activists across the country. In five years, NBCC has increased US federal government funding for breast cancer research nearly sixfold from $90 million to more than $500 million. Its goals are:
Research: increasing appropriations for high quality, peer-reviewed research and working within the scientific community to focus research on prevention and finding a cure.
Access: increasing access for all women to high quality treatment and care and to breast cancer clinical trials.
Influence: increasing the influence of women living with breast cancer and other breast cancer activists in the decision making that impacts all issues surrounding breast cancer.

National Cancer Institute (NCI)

The Cancer Information Service (CIS) of NCI serves as a community resource and provides information about cancer, including access to NCI's treatment database. NCI also organizes the Physician Data Query (PDQ), which provides information on clinical trials.
www.cancer.gov
(800) 4-CANCER

National Coalition for Cancer Survivorship

NCCS is the oldest survivor-led cancer advocacy organization in the United States. This online page lists resources and events about advocating for quality cancer care in your community and at the federal level.
http://www.canceradvocacy.org/

Oncology Nurse Advisor

Oncology Nurse Advisor offers clinical updates and evidence-based guidance to the oncology nurse community online and in print. Daily online exclusives cover late breaking oncology news, safe handling and administration of chemotherapy drugs, side effect management, and new developments in specific cancers.
http://www.oncologynurseadvisor.com/

Patient Advocate Foundation

It is a national nonprofit organization that helps ensure patient access to care, employment, and financial stability
http://www.patientadvocate.org/

Prevent Cancer Foundation

Focuses on advancing cancer research and provides fellowships for early-career scientists. The organization also advocates for cancer patients by lobbying at the federal level
http://preventcancer.org/

Sisters' Network

Committed to increasing local and national attention to the devastating impact that breast cancer has in the African-American community.

Dr. Susan Love Research Foundation: Act with Love
Dr. Susan Love Research Foundation’s mission is to achieve a future without breast cancer by focusing on prevention and finding the cause. Learn about our programs. Find out how you can support the Foundation and the groundbreaking research that will end breast cancer in our lifetime. Learn how to join the Army of Women and the Health of Women Study!
http://www.dslrf.org/

Susan G. Komen ®

Susan G. Komen is the voice for the 2.9 million breast cancer survivors and those who love them, working to ensure that the fight against breast cancer is a priority among policymakers in Washington, D.C., and every Capitol across the country. We are proud of our work over the years to protect breast cancer screening and research funding and to advance breast health and cancer care policy at the federal and state levels.
http://ww5.komen.org/GetInvolved/kaa.html

The Ulman Cancer Fund for Young Adults

A leading voice in the young adult cancer movement, The Ulman Cancer Fund for Young Adults works at a grassroots level to support, educate, connect, and empower young adult cancer survivors.
http://www.ulmanfund.org/

U.S. Department of Defense Congressionally Directed Programs

The Department of Defense is the second largest funding agency for breast and ovarian cancer research. This page discusses consumer participation in the DOD's research programs.
http://cdmrp.army.mil/cwg/
Breast Cancer Program: http://cdmrp.army.mil/bcrp/

Vital Options International

It is a nonprofit, cancer communications agency’s Advocacy in Action video and its talk radio show, The Group Room. These programs help us spread our voice of support for young women.
www.vitaloptions.org

Women's Environment and Development Organization (WEDO)

355 Lexington Avenue, 3rd Floor
New York, NY 10017
(212) 973-0325
email: wedo@igc.apc.org
Web Site: http://www.wedo.org
Co-sponsor of the 1997 World Breast Cancer Conference in Kingston, Ontario, this organization has a focus on prevention of breast cancer through education and action. Ask for their "Action for Prevention: Breast Cancer and the Environment" program.

Young Survival Coalition

Premier international, nonprofit network of breast cancer survivors and supporters dedicated to the concerns and issues that are unique to young women and breast cancer.
www.youngsurvival.org
National Headquarters:
80 Broad Street, Suite 1700. New York, NY, 10004
phone: 877.972.1011 
email:  resourcelink@youngsurvival.org
Local Support/Networking Groups all over the country. Find us on MeetUp.com (search YSC in order to find the closest YSC group to you)

Advocacy Organizations Outside of the United States

Advanced Breast Cancer International Consensus Conference, Lisbon, Portugal
http://www.abc-lisbon.org/

Asociación Cuyana de Mastología – Mendoza, Argentina
www.asociacioncuyanademastologia.com

Breast Cancer Aotearoa Coalition – New Zealand
www.breastcancer.org.nz

Breast Cancer Society of Canada (BCSC) – Canada
http://www.bcsc.ca

Canadian Breast Cancer Foundation (CBCF) – Canada
www.cbcf.org

Canadian Breast Cancer Network – Canada (English and French)
http://www.cbcn.ca/

Canadian Cancer Society (CCS) – Canada
http://www.cancer.ca/en/region-selector-page/?url=%2fen%2f

CanSurvive – Egypt
http://icansurvive.com/

EUROPA DONNA, The European Breast Cancer Coalition – Europe
http://www.europadonna.org/

Europe Patient Cancer Coalition – Europe
http://www.ecpc.org/

Federação Brasileira de Instituições Filantrópicas de Apoio à Saúde da Mama (FEMAMA) – Brazil
http://www.femama.org.br/novo/contato.php?menu=con

Federación Latinoamericana de Mastología
http://www.flamastologia.org/

Fundación Oncológica de Cáncer – Chile
http://www.cancerchile.cl/

Instituto Oncoguia – Brazil
http://www.uicc.org/

Movement Against Cancer (MAC) – Russiahttp://www.rakpobedim.ru

People Living with Cancer (PLWC) – South Africa
www.plwc.org.za

Rethink Breast Cancer – Canada
http://rethinkbreastcancer.com/

Simmon Foundation – Colombia
www.simmoncancer.org

Senologic International Society
http://www.sisbreast.org/

Taiwan Breast Cancer Alliance (TBCA) – Taiwan
http://www.tbca-npo.org.tw/

Willow Breast Cancer Support Canada – Canada
www.willow.org

ADVOCACY VIDEOS, MOVIES& CAMPAIGNS

“1 a Minute” Cancer Documentary Film
http://www.theconnextion.com/1aminute/1aminute_cat.cfm?RefID=118

Decoding Annie Parker
http://www.imdb.com/title/tt1464191/?ref_=fn_al_tt_1

Free the Data
www.free-the-data.org

In The Family
http://inthefamily.kartemquin.com/film

Why I wore lipstick to my Mastectomy
http://www.imdb.com/title/tt0874333/